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Living With NHL

Coping and adjusting to life with non-Hodgkin lymphoma (NHL) is difficult. Patients may experience different feelings when diagnosed with NHL. Additionally, patients being treated for NHL may experience various side effects or toxicities caused by the treatment. This page provides information about the management of symptoms and coping strategies.1,2

The emotional impact of a cancer diagnosis

Shock and denial: Shock is often the first reaction once the diagnosis of cancer is confirmed. Denial is when you try to cope with the news of your cancer diagnosis by pretending it’s not happening. This can happen when you feel overwhelmed and unable to accept the diagnosis. If denial continues, it can stop you from considering healthy coping strategies and being active in making informed decisions. Staying in denial might also affect your general health and wellbeing. 1,2

Sadness, fear, anxiety and panic: Sadness: There are feelings of sadness, fear, anxiety and panic which can be difficult feelings to experience. Anxiety can affect your day-to-day life in various ways. It can affect your mood, concentration, ability to relax and to get a restful night’s sleep. There are several ways to cope with these feelings and people who can help. 1,2

Guilt, blame and anger: You might blame yourself, or other people, for your illness. Understanding more about your cancer may help you feel differently. 1,2

Helplessness and loss of control: Feelings of loss of control and helplessness are common after NHL diagnosis. Some people describe feeling passive in their lives and a sense of things ‘happening to them’. It is important to regain a sense of control to understand why the tests and scans are being done and why a particular treatment is recommended. 1,2

Withdrawal and isolation: You may not like being to be around others and feel that no one really understands what you’re going through. Some people pretend to feel OK even when they don’t really feel this way. You might also worry about how people will respond if you tell them how you really feel. Although it is natural to want sometime alone. withdrawing from others all or most of the time could be a sign of depression, where you feel very low emotionally. It is different from feeling sad. There are many other possible symptoms of depression, which can be physical and psychological. 1,2

Each person’s experience with cancer is different, and the way an individual copes with the physical and emotional impacts of NHL is unique to each patient’s personality and situation. Below are some strategies to cope with common issues that patients may face. 1-3

Helpful coping strategies1-3

Build a Strong Support System

  • Communicate your fears and concerns about your disease by talking to your family, friends, doctors, and counselors
  • Maintaining a journal to write down your concerns can help
  • Find a support group or a one-to-one peer support program or other individuals who are also coping with cancer

Get Help For Depression

  • Feeling sad or having a depressed mood from time to time is not unusual in patients living with cancer, but this is not the same as having a psychiatric diagnosis of depression, known as “Major Depressive Disorder”
  • Watch for signs such as sleeping more or less than usual, a loss of interest in preferred activities, crying, or an inability to concentrate
  • If these symptoms last more than two weeks, ask for a referral to a psychiatrist, social worker, psychologist, or counselor who can help you cope with your feelings through talk therapy, medications, or both

Deal With Physical Changes

  • Some patients with lymphoma may feel unattractive because of hair loss and other changes in appearance caused by their treatment
  • If desired, plan and buy a wig or head covering if hair loss is a possibility
  • Seek advice from a beautician familiar with the side effects of cancer treatment about makeup if you are concerned about a blotchy complexion
  • Ask your healthcare team for advice on how to manage other temporary changes in your skin and brittle nails

Maintain a Healthy Lifestyle

  • Eat a healthy diet that includes fruits, vegetables, proteins, and whole grains
  • Follow a physical exercise routine, which can help control weight, improve mood, and reduce anxiety, depression, and fatigue
  • Get ample rest to help fight the stress and fatigue from your disease and its treatment
  • Quit smoking and reduce alcohol consumption

Set Reasonable Goals

  • Having goals for how you want to live your life during and after treatment can help you maintain a sense of purpose
  • Avoid setting unreasonable goals, such as working full-time if you do not yet have the energy or stamina to do so
  • Stay as active and involved as you can in work and other activities that interest you

Manage anxiety

  • Self-help strategies like mindfulness, yoga, and meditation; and talking therapies such as counselling can help manage anxiety

References

  1. Lymphoma Research Foundation. Understanding Non-Hodgkin lymphoma. 10th ed; 2023. (https://lymphoma.org/wp-content/uploads/2023/09/LRF_NHL_Booklet_2023_v3.pdf).
  2. Cancer Research UK. (https://www.cancerresearchuk.org/about-cancer/coping/mental-health-cancer/how-cancer-make-you-feel). Last reviewed November 2022.
  3. Lymphoma Action. The emotional impact of living with lymphoma. 2024. (https://lymphoma-action.org.uk/about-lymphoma-living-and-beyond-lymphoma/emotional-impact-living-lymphoma#Findingout).

All URLs accessed July 2, 2024

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